All In

There is NOTHING like driving on open road blasting your favourite music, or running through a forest with an iPod blasting your favourite music, or dancing like a fool in your living room with the music full blast.

I'm All In about http://mastocytosis.ca/ . I've pushed my health to the absolute limit to get that off the ground and every second was worth it. The lessons I've learned via other people's ego trips alone was worth gold. But the bottom line, we've got a shot at improving healthcare for everyone in Canada finally. It's been like walking a tightrope, holding onto patience, understanding, coddling some, prodding the ass of others, and processing all the traumas fellow patients experienced in the meantime. But we did it. This weekend we've got an international patient survey releasing which I've been pushing for and waiting on for 2 years.

And then, on January 21st, I walk away, from leading the charge at least. I'm still involved in patient supports and national co-ordination of same. Next weekend, I step aside for a new leader for MSC and she is worth everything to me. The confidence I have in her, as a patient, never mind as former founder and president, is immeasurable. And for me, I get to find out the answer to this question:-

"So what do you do with your days and your life when you find yourself disabled and trying to enjoy life with an incurable illness?"

Until 2010, literally every year of my 47 years of life has been lived for the safety, security and safeguarding of someone else's life. This year, 2012, I'm about to start living my life just for me. I have no clue what I'm doing or what I can do or what it will be. But I can't wait to live it for myself.

Fashion, photography, art, history....here I come! With drugs of course. Prescription meds so it's all ok and legit. Thank goodness for prescription meds.

Beyond that, I really look forward to being All In for my own life. Finally!